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Cancer Survivorship Issues - General Information
Author: thedisabilityexpert.com
This site provides free
information about applying for Social Security disability benefits.
http://www.thedisabilityexpert.com/index.html
This
site hopes to take some of the mystery out of the process by which the
Social Security Administration decides if a person qualifies for Social
Security disability benefits. Understanding the process can help a
person increase the chances that he or she will qualify for Social
Security disability benefits. Many long-term cancer survivors have
unusual health problems and have reported difficulty with disability
determinations.
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Late Effects: Treatment-related Problems
Author: Cleveland Clinic
Special Recommendation from: Bren
Late Effects of Cancer Treatment
http://cms.clevelandclinic.org/childrenshospital/body.cfm?id=180
This website was created by the Cleveland Clinic and outlines possible late effects of various cancer treatments and is similar to the Children's Oncology Group follow-up guidelines.
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Young cancer survivors face burdens: Impact of treatment in 1970s and 80s being felt now
Author: CNN.com
Special Recommendation from: Fran
Late Effects of Cancer Treatment
http://www.cnn.com/2005/HEALTH/conditions/05/17/cancer.children.ap/index.html
This story was based on research presented at the 41st Annual Meeting of the American Society of Clinical Oncology in May 2005. Researchers studied 10,397 cancer survivors who were diagnosed and treated between 1970 and 1986 and 3,034 of their siblings who did not have cancer. The research showed the tremendous medical, financial and emotional burdens that those treated in the 1970s and 1980s are now facing.
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Chemocare: Care During Chemotherapy and Beyond
Special Recommendation from: Carolyn
Late Effects of Cancer Treatment
http://www.chemocare.com/
A website sponsored by Ortho Biotech Products (marketers of Procrit), endorsed by figure skater Scott Hamilton. Provides practical and technical information about side effects and late effects of cancer treatments. Topics: medical definitions, managing side effects of chemo, eating well during treatment (and after, depending upon late effects that involve the digestive system), and a section of survivor experiences. Features a Message Board, although preserving the confidentiality of those posting to the board is unknown. Most useful for those seeking lists of late effects from specific antineoplastic agents and/or radiation therapy, and treatment guidelines for these late effects.
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Late Effects of Chemo and Radiation on Bladder
Special Recommendation from: Carolyn
Late Effects of Cancer Treatment
http://www.chemocare.com/managing/fullstory.sps?iNewsid=24632&itype=1875
A link within the Chemocare website that has medical information concerning side effects and late effects of chemo and radiation on the bladder, including cystitis and hemorrhagic cystitis (gross hematuria, or blood in the urine).
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Medline Plus
Special Recommendation from: Carolyn
Late Effects of Cancer Treatment
http://www.nlm.nih.gov/medlineplus/ency/article/000300.htm
Medline article that includes causes, symptoms, risk factors, tests and treatment options for radiation enteritis, a side effect/late effect of cancer treatment on the digestive system. Good overview, but does not give exact medical guidelines (instead, see National Cancer Institute's Health Professional Version link below).
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American Cancer Online Resources
Late Effects of Cancer Treatment
http://www.acor.org
This site has a great deal of useful information for cancer patients and survivors. There are a number of "mailing lists" including one specifically for long-term survivors. The long-term survivors list can be found by clicking on Mailing Lists, then Survivorship Issues, and finally LT-SURVIVORS. When you join, you may also read through the message archives that will give you a feeling for what the group is all about and how it can help you. Also, check the e-mail addresses and biographies listed on this site for more information.
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